CRL Training
The CRL Resource Guide will orient a new Community Research Liaison, other outreach coordinators, and other support staff with general resources on Alzheimer's and related dementias, clinical research, and recruitment.
RADAR PI Seminar
Dr. Mary Sano and Dr. Sharon Brangman review three key points from Good Clinical Practice training and review how they play out in live research situations. Points covered include Informed Consent, Confidentiality, and Recruitment and Retention.
Accelerator Manual
The Accelerator Manual provides background to the Accelerator concept and provides a guide to replicate the Accelerator structure.
Case Studies
Community Relationship Building:
Seasons of Change Community Event
Community Relationship Building:
Equity in Research Community Event
Additional Resources
CRL Toolkit: Community Engagement Materials
CRL Presentation on Research
A research focused presentation for community members who have expressed interest in learning more about research after other educational and relationship building events.
Accelerator Presentation on Participant Handoff
Presented to the Accelerator team to discuss the process of moving research interested individuals from the CRL to the study coordinator. Accelerator members discussed unique ways to improve the Upstate process.
Use of Community Based Participatory Research in Alzheimer’s & Dementia: Annotated Bibliography
Diversity in Clinical Research Videos
Mount Sinai and SUNY Upstate feature the research process at their ADRC and Geriatrics unit.
Also available in Spanish
Publications
The use of a testimonial video featuring diverse ADRC participants to change research attitudes in the elderly community
Margaret Sewell, Judith A. Neugroschl, Mari Umpierre, Shehan Chin, Jade Nunez, Scarline Martinez, Paulette Fernandez, Vielka Inoa, Mary Sano. The use of a testimonial video featuring diverse ADRC participants to change research attitudes in the elderly community. Alzheimer’s Dement. 2024;20(Suppl. 4):e089844. https://doi.org/10.1002/alz.089844
Multisectoral Collaborations to Increase Recruitment and Retention of Diverse Older Adults in Biomedical Research
Roger Wong, Jason R Grullon, Sarah E McNamara, Nancy H Smith, Colleen A Dillenbeck, Kathy Royal, Sharon A Brangman (2024). Multisectoral Collaborations to Increase Recruitment and Retention of Diverse Older Adults in Biomedical Research. The Journals of Gerontology. Series A, Biological Sciences and Medical Sciences, 79(3), glad259. https://doi.org/10.1093/gerona/glad259
Community research liaison role in increasing participation of African Americans in cognitive research: A case study
Sharon Brangman, Kathy Royal, Colleen Dillenbeck, Sarah McNamara, Nancy Smith, Eve De Rosa, Adam Anderson, and Elizabeth Riley. Community Research Liaison (CRL) Role in Increasing Participation of African Americans in Cognitive Research: A Case Study. Alzheimer's Dement., 19: e062941. https://doi.org/10.1002/alz.062941
Achieving diversity in study populations: the importance of community engagement
Sharon Brangman. Achieving diversity in study populations: the importance of community engagement. Journal of the American Geriatrics Society. 2022. https://doi.org/10.1111/jgs.18043
Community Research Liaison (CRL) Role in Increasing Participation of African Americans in Cognitive Research: A Case Study
Sharon Brangman, Kathy Royal, Sarah McNamara, Nancy Smith, Eve De Rosa, Adam Anderson, and Elizabeth Riley. Community Research Liaison (CRL) Role in Increasing Participation of African Americans in Cognitive Research: A Case Study. AAIC 2022, San Diego, CA.
Community Research Liaison Role in Increasing Participation of African Americans in Cognitive Research
Sarah McNamara, MS; Kathy Royal, MA, Colleen Dillenbeck, MA; Nancy Smith, MA; Sharon Brangman, MD. Community Research Liaison Role in Increasing Participation of African Americans in Cognitive Research. APHA 2022, Boston, MA.
Recruitment Accelerator for Diversity in Aging Research - Cognitive Loss and Dementia (RADAR-CLD): Perspectives on Registry Recruitment
Mary Sano, Sharon Brangman, Shehan Chin, Sarah McNamara, Judith Neugroschl, Kathy Royal, Margaret Sewell, Nancy Smith, Mike Splaine, Mari Umpierre, and Jennifer Vasconcellos. Recruitment Accelerator for Diversity in Aging Research - Cognitive Loss and Dementia (RADAR-CLD): Perspectives on Registry Recruitment. CTAD 2022, San Francicso, CA.
Enhancing Underrepresented Group Participation in Aging Research Through Workforce Development of the Community Research Liaison
Anakaren Lamas, Jennifer Vasconcellos, Mari Umpierre, Margaret Sewell, Judith A Neugroschl, Shehan Chin, Crispin Goytia, Michael T Kinsella, Nancy Smith, Maria Loizos, Sarah McNamara, Sharon Brangman, Mary Sano. (2021), Enhancing underrepresented group participation in aging research through workforce development of the Community Research Liaison. Alzheimer's Dement., 17: e054561. https://doi.org/10.1002/alz.054561
